Sickle Cell Disease News Home | Sickle Cell Disease News
WEBSep 25, 2024 · The number of stroke cases among adults and children with sickle cell disease (SCD) continues to increase in at least one U.S. state, indicating a need for greater adherence to standard-of-care blood transfusions and more attention paid to factors that can be controlled to reduce the risk of…. October 1, 2024 News by Steve Bryson, PhD.
Desferal, to prevent iron overload with SCD, acquired by Mitem
WEB5 hours ago · by Patricia Inácio, PhD October 8, 2024. Mitem Pharma has acquired worldwide rights to Desferal (deferoxamine), a therapy commonly used to lower excessive and damaging iron levels induced by blood transfusions in people with sickle cell disease (SCD) or other anemias. The acquisition was reached …
FDA clears study of potentially less toxic SCD conditioning regimen
WEBJul 30, 2024 · The U.S. Food and Drug Administration (FDA) gave the greenlight for Iomab-ACT, a potentially less toxic conditioning regimen, to be tested in people with sickle cell disease (SCD) undergoing a stem cell transplant. The study will be conducted in collaboration between Actinium Pharmaceuticals, which is …
Fighting sickle cell stigma, even within our own community
WEBAug 28, 2024 · The harsh reality about patients who stigmatize. Stigma within the sickle cell community usually stems from ignorance about our disease. Patients with a mild form of sickle cell sometimes assume that their better health is always because of their superior self-care habits. They mistakenly assume that bad complications are caused by patients ...
How I manage sickle cell disease and cold weather
WEBNov 10, 2023 · During the winter, I also adjust my diet to ensure I’m eating foods that will help boost my immunity, with a focus on increasing my intake of zinc and vitamins C, D, and E. These can be found in beef, broccoli, bell peppers, spinach, lemon, garlic, honey, strawberries, kiwis, eggs, almonds, tomatoes, seeds, nuts, mushrooms, and yogurt.
Approved treatments for sickle cell disease
WEBCasgevy (exagamglogene autotemcel), formerly known as CTX001 or exa-cel, is an approved gene-editing therapy used for people with SCD who experience recurrent vaso-occlusive crises. It is designed to reduce the frequency and severity of these painful crises. The one-time therapy is designed to be administered via an intravenous or into-the-vein ...
News Archives - Sickle Cell Disease News
WEBA bone marrow transplant may help reverse heart damage in people with sickle cell disease (SCD), according to a study. The findings were published in a letter to the editor titled, “Impact of Hematopoietic Cell Transplantation on Myocardial Fibrosis in Young Patients with Sickle Cell Disease,” in…. August 6, 2024 News by Marisa Wexler, MS.
Infections are a silent menace for many with sickle cell disease
WEBMar 27, 2024 · Sickle cell disease predisposes people to infections and can aggravate the severity of an infection by compromising the immune system. The spleen is a vital organ in the immune system, responsible for filtering blood, removing old or damaged cells, and producing antibodies. In sickle cell disease, the sickling of red blood cells can impair ...
What I’ve Learned About Protein and Sickle Cell Disease
WEBSep 8, 2021 · This is shortened to 8-25 days for those with sickle cell disease. This means that the bone marrow is constantly under pressure to churn out new red blood cells. This process needs plenty of energy, and since blood cells are made of protein, a person with sickle cell needs more protein. Protein is made up of building blocks called amino acids.
How sickle cell awareness helps both patients and caregivers
WEBJul 26, 2024 · Taking this approach provides family and friends with the understanding required to offer effective support to their loved ones. Understanding the factors that can cause a sickle cell crisis, like dehydration, extreme temperatures, and stress, helps loved ones create a safer environment for the patient. Ada has managed to prevent numerous ...